Published on Mar 26, 2025
Epilepsy affects thousands of Australians, but there’s hope – about 70% of people with epilepsy can control their seizures with the right medication. On Purple Day (March 26), a global day of epilepsy awareness, we’re shining a light on how anti-seizure medications (also called anti-epileptic drugs, or AEDs) help people live seizure-free. In this post, we’ll explain in simple terms how these medications calm the brain’s electrical storms, highlight common treatments and side effects, and discuss why sticking with your meds is so important. We’ll also touch on how to conveniently manage your epilepsy treatment with online prescriptions in Australia. (Remember: Always consult a healthcare professional for personal medical advice.)
Every year on March 26, the world turns purple for epilepsy awareness. Purple Day is a grassroots event that aims to dispel myths and stigma around epilepsy, and to support those living with this neurological condition. It’s a reminder that epilepsy is more common than many think – over 250,000 Australians are living with epilepsy, and about 3% of people will experience epilepsy at some point in their lives.
Despite its prevalence, epilepsy is a condition many people manage successfully. Thanks to modern treatments, most individuals with epilepsy can lead active, normal lives. The key is controlling seizures, and that’s where medication comes in. Anti-seizure medications don’t cure epilepsy, but they prevent seizures and give people freedom to live without constant worry of the next episode.
Why focus on medication on Purple Day? Because it’s a message of hope: with the right treatment, the majority of people with epilepsy – around seven in ten – can become seizure-free or have their seizures well controlled. Spreading awareness of this fact can reassure those newly diagnosed that epilepsy isn’t a life sentence of unpredictable seizures. It’s a manageable condition for most, especially with proper medical care and adherence to treatment.
Epilepsy is a chronic brain condition that causes recurring seizures. A seizure is like an “electrical storm” in the brain – a burst of abnormal electrical activity among brain cells. This sudden surge can lead to various symptoms, from convulsions (uncontrollable jerking movements) and loss of consciousness, to brief lapses in awareness or odd sensations. Seizures vary in type and intensity. What they have in common is they’re usually short-lived (seconds to minutes), and between seizures a person might feel completely fine.
Key facts about epilepsy in Australia:
Now, let’s dive into how we achieve that control: anti-seizure medications!
Think of the brain as a complex electrical network. In epilepsy, certain “wires” in that network occasionally misfire, causing a surge of abnormal signals – a seizure. Anti-seizure medications act as stabilizers for this electrical system. In simple terms, they calm the brain’s excessive electrical activity and make seizures less likely to happen.
Here’s how anti-epileptic drugs do that:
Importantly, these medications prevent seizures – they don’t stop a seizure already in progress and they don’t “cure” the underlying tendency to have seizures. Think of it as chronic management, similar to how insulin manages diabetes. As long as you take the medication consistently, it helps keep seizures at bay by maintaining balance in the brain’s electrical activity.
For most people, finding the right medication (or combination) can control seizures effectively. It may take a bit of trial and error with your doctor to find the medication that works best for your type of epilepsy with the fewest side effects – but once the right one is found, many patients enjoy long stretches, even years, of being seizure-free.
(Fun analogy: If your brain is an orchestra prone to the occasional chaotic “free jazz” performance (seizure), anti-epileptic drugs are like the conductor keeping each instrument in line and on tempo. The result is harmony (no seizures) instead of chaos.)
Dozens of anti-seizure medications exist, and new ones continue to be developed. In Australia, medication is the main treatment for epilepsy, and doctors choose a specific drug based on the person’s seizure type, age, and individual factors. Here are some of the common AEDs you might come across:
Most epilepsy medications in Australia are listed on the Pharmaceutical Benefits Scheme (PBS), which means they are subsidised by the government. If you have a Medicare card, you’ll usually pay only a standard co-payment for these prescriptions. (For example, a medicine that could cost hundreds per month without subsidy might cost around $30 with PBS, or about $7 with a concession card.) This makes long-term treatment much more affordable for patients. Online prescriptions can be especially handy here – you can get your PBS-covered epilepsy meds through an eScript and pick them up or have them delivered, without extra hassle.
Your doctor’s goal is to find a single medication that controls your seizures (monotherapy), because that minimises side effects. Many people achieve seizure control with one drug. If one medication doesn’t control your epilepsy, another might be tried, or sometimes two medications are used together for tough-to-control cases. It’s a highly individualized process – what works for one person may not work for another, so it’s important to maintain open communication with your healthcare provider and report how you’re doing on the treatment.
(Did you know? The Australian PBS continuously updates to include new epilepsy treatments. For example, in 2019 the PBS added lacosamide for children with epilepsy, turning a $4700/year medication into one that costs families just $40 per script. This highlights Australia’s commitment to making epilepsy care accessible.)
The big benefit of anti-seizure medication is obvious – seizure freedom (or at least significant reduction in frequency). Regaining control over epilepsy can be life-changing. You can drive again after a seizure-free period (as allowed by Australian regulations), you don’t have to live in fear of the next seizure around every corner, and your overall safety and independence improve. Many patients say it feels like “getting my life back.”
However, like any medication, AEDs can have side effects. The good news is that not everyone gets side effects, and many side effects are mild or temporary (often improving after a few weeks as your body adjusts). Your doctor will aim for the lowest effective dose to mitigate side effects. Common side effects of epilepsy medications can include:
Most side effects are manageable. If side effects persist or really bother you, tell your doctor. Often, adjustments can be made – maybe a dose reduction, a slow-upward titration, or switching to a different medication – to find a better balance. Never suffer in silence or just stop your pills; there are always solutions to explore with medical guidance.
For context, Australia’s Healthdirect service and the Epilepsy Foundation Australia both provide easy-to-understand resources about epilepsy medication side effects and management strategies. You’re not alone – pharmacists, GPs, and neurologists are all there to help you manage any unwanted effects.
(Tip: Keep a symptom diary when starting a new epilepsy medication. Note any side effects and when they occur. This helps your doctor figure out if it’s truly the med causing the issue and decide on the best way to address it.)
One of the most important factors in staying seizure-free is medication adherence – taking your anti-seizure meds exactly as prescribed. Skipping doses or stopping medication on your own can be dangerous. In fact, missing medication is a top trigger for breakthrough seizures in people whose epilepsy was otherwise controlled.
Why is sticking to your prescriptions so crucial? If blood levels of the medication drop (because of a missed dose or stopping), the brain’s electrical activity can surge back up – and you might have a seizure. Suddenly stopping some epilepsy drugs can even lead to severe rebound seizures or status epilepticus (a prolonged seizure emergency).
Never stop epilepsy medication abruptly without medical advice. As the NHS warns, “Do not change your dose or stop taking your medicine without talking to your specialist.”. The Better Health Channel in Australia reinforces that any withdrawal from anti-seizure meds should be done slowly and under a doctor’s supervision – stopping suddenly can provoke a seizure or even a medical emergency. In short, always talk to your doctor if you feel you might need a change; they will guide you safely (for example, by tapering the dose over weeks).
Medication adherence tips:
Adhering to medication can sometimes be emotionally tough – taking a pill every single day reminds you of a condition you might rather forget about. If you struggle with this, speak openly with your healthcare provider. They can provide strategies, connect you with support (even counselling), or possibly simplify your regimen. Remember why you’re doing it: to stay healthy and seizure-free.
A note on medical guidance: Sometimes, after a few seizure-free years, a specialist might consider if you can come off medication. This is only done in carefully selected cases. Doctors will weigh factors like your seizure type, how long you’ve been seizure-free, and other considerations. If the decision is to try stopping, they will taper the dose very gradually and monitor you closely. Never attempt this on your own. It’s a decision that must be made with a doctor. If epilepsy meds are like a safety net keeping you from falling into seizures, you want a professional holding that net!
In today’s digital age, getting your medication doesn’t always require an in-person doctor visit. Online prescriptions have become a convenient option for Australians, especially for ongoing treatments like epilepsy where you might just need a refill or a quick consultation.
Telehealth services such as NextClinic make it easy to consult a doctor from home and obtain your prescription electronically. Here’s how this can benefit people with epilepsy:
A subtle but important benefit: Some people with epilepsy feel anxious about going out if their seizures aren’t fully controlled. Telehealth provides a safe, comfortable way to get care from home until you gain confidence with better seizure control.
Living with epilepsy can be challenging, but remember: most people with epilepsy lead full, active lives. With the right medication and support, many are completely seizure-free for years. Medical advances continue to improve outcomes, and ongoing research (much of it supported by the National Health and Medical Research Council (NHMRC) in Australia) is exploring even better treatments and, one day, potential cures.
If you have epilepsy, build a support network around you:
Finally, keep hope. Epilepsy treatment today is more advanced than ever. Most people find a regimen that works for them. On days like Purple Day, we’re reminded of the strength of the epilepsy community and the progress being made. With medication, support, and healthcare innovations like prescriptions online, living well with epilepsy is absolutely within reach.
Q: How effective are anti-seizure medications for epilepsy?
Very effective for most people. About 70% of people with epilepsy can achieve good seizure control with anti-seizure medications. This means that out of every 10 people, around 7 become seizure-free (or have only rare seizures) by taking daily medication. Effectiveness can depend on the individual and finding the right drug, but it’s the first and most successful line of treatment for epilepsy.
Q: How do anti-epileptic drugs (AEDs) work to prevent seizures?
They work by stabilising the electrical activity in your brain. In epilepsy, neurons can fire off too easily, like an electrical surge. AEDs calm things down – they make it harder for neurons to get over-excited. Some medications do this by blocking channels on nerve cells that trigger electrical impulses, and others boost calming neurotransmitters in the brain. The end result is that the brain is much less likely to have the sudden burst of abnormal activity that causes a seizure.
Q: What are common side effects of epilepsy medications?
Side effects vary by medication, but common ones include fatigue, dizziness, drowsiness, blurred vision, mood changes (like irritability or mood swings), and sometimes nausea or weight changes. Many side effects are mild and often improve as your body adjusts. Not everyone gets them. If side effects trouble you (for example, severe tiredness or emotional changes), let your doctor know – a dosage tweak or changing medication can often help.
Q: Is it safe to stop taking my epilepsy medication if I feel better?
No – not on your own. Always consult your doctor before making changes. Stopping epilepsy medication abruptly can quickly lead to serious seizures. Even if you’ve been seizure-free for a long time, it may be because the medication is working. Doctors sometimes plan a gradual withdrawal after at least 2–3 seizure-free years, but this must be done slowly and under medical supervision. Never just stop — doing so could cause a very severe seizure or status epilepticus. Always get medical guidance.
Q: How can I get my epilepsy medication through online prescriptions in Australia?
You can use telehealth services like NextClinic to get prescriptions online conveniently. The process usually involves having an online consultation (via video call or phone) with a registered doctor. If appropriate, the doctor will issue an eScript (electronic prescription) for your anti-seizure medication. This eScript is sent to you via SMS or email instantly. You can take it to any pharmacy or use it with online pharmacy services. It’s a legal, PBS-subsidised prescription, just delivered electronically. Online prescription services are great for repeat scripts or when you can’t see your doctor in person, but you still get proper medical oversight through the telehealth consult. Always use reputable Australian telehealth providers to ensure quality and safety.
Q: Where can I find support and reliable info about epilepsy?
There are great resources in Australia. Epilepsy Foundation Australia and Epilepsy Action Australia provide information, support groups, and helplines for people with epilepsy and their families. Healthdirect (healthdirect.gov.au) offers trustworthy information and a 24/7 nurse advice line. Your state’s health department site (for example, the Better Health Channel in Victoria) has excellent fact sheets. And of course, your GP and specialist are key resources – don’t hesitate to reach out to them with questions about managing epilepsy. Remember, you’re not alone, and with the right support, epilepsy is a condition that can be managed effectively.
This medical blog provides general information and is not a substitute for professional medical advice, diagnosis, or treatment. Always consult with your regular doctor for specific medical concerns. The content is based on the knowledge available at the time of publication and may change. While we strive for accuracy, we make no warranties regarding completeness or reliability. Use the information at your own risk. Links to other websites are provided for convenience and do not imply endorsement. The views expressed are those of the authors and not necessarily representative of any institutions.
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